I think a lot about those close to me — those who care about me. These people search my face, tap into my voice, review my body position, check my energy level, seeking to see “how I am”. These are the actions of love and care; I understand this all too well.
There actions are very much appreciated, but they remind me that when one has a chronic illness, all people in the individual’s circle sense the changes. There is trauma and suffering for them as well. Life is not the same. I am not the same. They are not the same.
The unpredictable is a now a daily situation as I ponder: will I be able to walk today, will my MS hug become worst, is this a new pain or tingle, cog fog explains my confusion, and will my hands continue to work.
Our world is not made for those who have chronic illness, be it cancer, MS, or any other malady. So patience and gratitude are always on my mind, for there is a lot to celebrate, and we must!
MS Fortunate 