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Some days are just tough: tough moving, tough thinking, tough doing. I have had a few weeks of tough. I do not know what brought this lull in strength and fortitude on, but it was omnipresent. I am finishing my college quarter and have been busy encouraging students to submit their final writings, presenting information…
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Last week I had two bad, awful, terrible days in a row. I could not get my body to cooperate with my need to move and coordinate my actions with my desires to get things done. I needed my trekking pole to navigate our campus since I wasn’t just in my office those days. I…
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This third year of walking to raise money for MS research was fun. It is always learn about the new drugs on the market and find people to talk to about MS. My team of walkers was smaller this year, but it was hale and hearty. We did the three miles; in fact, we were…
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I have tried to get to my ideas typed in to this blog, and each day, I say to myself: Today is the day! No such luck. Sorry, team! In April, I returned to work face-to-face, and it has been a bit of a change for me. Previously, I worked from home where I had…
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Ok, so I am tired again. Yesterday, I met up with a very dear friend for lunch. In total, this event was only four hours including driving to and from our lunch date. I am wiped out today and am on my third nap. Was it worth the fatigue, inability to sleep, and pain. Absolutely!…
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Can I open the door to my workspace without a struggle? Will my cell phone work if I get stuck in my office or workspace? Should I drink my water and plan my bathroom breaks? Can I reach the handrail before I have a foot drop? Will others notice my pauses and re-balancing against the…
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I was thinking that we all know how when we have the flu or a bad chest cold, how we just relish and wait for the illness to go away. We look forward to those days when we can “be ourselves” again. I tried so hard to look at MS like this, so hopeful that…
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About 3 weeks ago, we invited our dear neighbors over for homemade potstickers and good cheer as we headed into the Lunar New Year. We invited them for lunch at 2 pm. This time is when I am normally curled up in bed taking a nap with my Kindle in hand. I chose the time…
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The MS diagnosis helps one make priorites in life. Being present provides focus. Fatigue is real. So is my bed. Get in it, Girl! Eat for fuel and for health. Movement is needed, rain or shine. Just do it: WALK! Appreciate those in your circle that support and care about you. Take all medications on…
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Today, I was on campus to attend a meeting of sorts. Just navigating the stairways and hallways was a chore. Handrails are a blessing and as are chairs and benches to take a break. The wobblies, as I call my tremors and numbness in my legs, are fairly common distractions. Yet, on other days my…
MS Fortunate 