Latest Post
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I walk between 10 and 12 miles a day in my neighborhood. This is a great time for reflection, planning, and reenergizing myself. Recently, I took a fall and had to live for two-weeks with two very black eyes. Now, I have returned to walking with either one or two poles depending on my strength
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Attending this forum on Zoom was a great opportunity to hear from the medical professionals who are doing research and working with MS patients. There is a growing number of people researching cannabis for pain relief, the connection between eye exercises and balance, nutrition and lifestyle, acupressure for MS, Precision medicine: Biomarkers and MS, and
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About two weeks ago, I was walking with my husband when boom; I found myself face planted into the asphalt and blood on my face. I was so stunned that I just sat in the middle of the road. A rock was in the road, and it was just enough to catch my foot and
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Recently, I received a comment about having a disabled parking placard. Maybe this is because I walked that day, outwardly presented myself as healthy, and was engagedin the activities of the day. Clearly, the person commenting knows little about the unpredictability of MS, how we prefer not to use the placard, and how getting around
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Saturday, May 13, 2023 was the MS Walk in Wenatchee, WA. What a glorious day it was! The sun was shining brightly, and the sky was blue. The walk took place in an absolutely gorgeous park, Walla Walla State Park. The Wenatchee walk is a relaxed and low-key event. It is more conversational, and walkers
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I think that MS is a lonely disease, for most days, outsiders do not see the toll MS carries. After 5 weeks of working with my clinical researcher, Lexi, I have to say that I have contributed a bit to her work by explaining how it feels to have and deal with MS. I believe
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MS is an incurable and unpredicatable disease. From one day to the next, I have no idea if my body will allow me to do the things I want to do with ease or with a fight to do the minimal. Truly, some days, it is mind over matter. I liken MS with dancing in
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Self-efficacy means that you believe that you have the ability to do something. However, sometimes with MS, it is not the belief in your ability to do something that gets in the way of doing it. Instead, it is the energy and cognitive labor required to do that very thing you believe that you can
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Spasticity is common in about 80% of the people who have multiple sclerosis. In this culture, the term spastic or spasticity carries a heavy semantic burden. It implies a less than other’s mindset when in fact it comes from an inability to control one’s muscles. MS spasticity results from the demyelination along the nerves of
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Speaking MS: A Glossary of Common Terms This is a fairly comprehensive list of the terminology people with MS use and listen to when meeting with their physicians and neurologists. Join us and be in the know.
