Category: Current MS Research
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New Research Study Indicates Smart Devices Are Reliable for Monitoring MS
I have used my smart watch and I phone to monitor my steps, and asymmetry while walking for the last two years. It is wonderful to see more public discussion of ways to monitor MS.
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Another Survey – PROMS – Reason for hope and change in health care
I just took another survey about patient-centered health care experience. This is really important as I have felt health care does not really connect wiht the challenges of people with MS. The general feeling is that “as a patient you just have to deal with it.” Patient Reported Outcomes for Multiple Sclerosis (PROMS) is an…
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A Survey on the Influence of Hormonal Stages of Life on Multiple Sclerosis Symptomology and Physical Function.
I just participated in an online survey that is seeking ways to work with health care providers and their patients with MS. These studies are so important for me because I can participate and contribute educating the health care industry about patients with MS. Kristin Johnson is a researcher from Colorado State University in the…
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Online Survey: Resilience, Adversity, and Health in People with Multiple Sclerosis
I just finished a research survey posted on nationalmssociety.org. I was struck by the fact that this research was interested in considering emotional/mental behaviors and resilience–like someone actually was willing to get inside the heads and bodies of msers. In nutshell, this captures the big picture of the survey: “Researchers at the University of Washington…
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Interesting article on likelihood to stay on treatment plan
I get it. Sticking to a medication plan for MS can be a challenge. You might feel a bit tied down by the injections or the IV treatment plans. Furthermore, the costs for such DMT are very steep – from $3000 to $9000 without insurance or support from the drug companies. I wonder if insurance…
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Activism for MS Global Access to DMT
Monday, July 31, 2023 Multiple Sclerosis Coalition Applauds World Health Organization Decision Press Release Multiple Sclerosis Coalition Applauds World Health Organization Decision Decision to add MS treatments to Essential Medicines List will improve access globally Washington, DC, July 26, 2023: Recently, the World Health Assembly adopted the Intersectoral Global Action Plan on epilepsy and other neurological disorders,…
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More Research for Better Treatments
Newly discovered marker of multiple sclerosis severity may lead to better treatmentsA newly identified genetic marker of disease severity in multiple sclerosis (MS) may eventually lead to better treatments.
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Try a Clinical Trial-You Might Learn Something
I have wanted to be involved in moving the research forward for MS. I received an email asking if I would like to participate in a clinical trial. I responded and met the criteria. I am now involved in the physical activity pilot intervention for persons newly diagnosed with multiple sclerosis. The purpose of this…
MS Fortunate 