Category: M.S. Speaks
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The Lingering of Lhermitte’s Sign
No one choses to be hit by lightening. Yet, MSers experience the shock of this specific nerve pain called Lhermitte’s Sign often in the most unsuspecting of times. What does Lhermitte’s sign feel like? Lhermitte’s sign is typically described as a sudden, intense “buzzing” feeling, akin to an electric shock feeling in the spine. The…
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Two Years In: What I know Today
The MS diagnosis helps one make priorites in life. Being present provides focus. Fatigue is real. So is my bed. Get in it, Girl! Eat for fuel and for health. Movement is needed, rain or shine. Just do it: WALK! Appreciate those in your circle that support and care about you. Take all medications on…
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My MS Diagnosis Trauma
Although my MS diagnosis came unexpectedly and suddenly, I realized that after a year and a half later, I had ongoing trauma. This surfaced with a check up with my primary care physician — not my neurologist who seemed surprised and later said, “I did not know you had trauma over your MS diagnosis.” Really?!!!? My…
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Walk MS is coming up; two events are on my calendar: Seattle 4/21 and Wenatchee 5/18
Once again, I am gearing up for the Seattle and Wenatchee MS walks. I invite those who wish to join the cause and are brave enough for the usual blustery winds and cool air of the Seattle walk and the hot dry air of Wenatchee. While the Seatle walk is bustling and loud at time…
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Unpredictable Challenges
I have read so many articles and posts on MS. I try to focus on what I can do to be healthy: walk a lot each day, eat well, drink a lot of water, rest, do my chair yoga, stretch, watch my mood, take my DMT injections three times a week, and on and on.…
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M.S. Speaks: Foot Drop
Of recent, I have had more pronounced foot drop. I think because I walk a lot that this is a result of a disruption in the nerve pathway between the legs and your brain, rather than muscle weakness. This disruption means that I do not always properly lift or place my foot during walking. As…
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Before The Fire, Smoldering Neuroinflamation
MS can never be ignored; one symptom or another is always present. I live with this every single day. Try as I might, there are questions and changes that I have that are never resolved. I cope by trying to plan for unpredictable outcomes. This, in and of itself, is stressful. It is with this…
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Dysesthesia
Last night was a toss and turning night with all sorts of zingers, itching, and pain. Nothing really helps calm the nerves when they want to go dancing. With MS, inflammation can cause damage to sensory nerves in the brain and spinal cord. Sensory symptoms are real. These include the feelings of pins and needles,…
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The Michigan Holistic Health and Wellness Forum for MS + Eye Exercises
Attending this forum on Zoom was a great opportunity to hear from the medical professionals who are doing research and working with MS patients. There is a growing number of people researching cannabis for pain relief, the connection between eye exercises and balance, nutrition and lifestyle, acupressure for MS, Precision medicine: Biomarkers and MS, and…
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My Fall from Grace…Not
About two weeks ago, I was walking with my husband when boom; I found myself face planted into the asphalt and blood on my face. I was so stunned that I just sat in the middle of the road. A rock was in the road, and it was just enough to catch my foot and…
MS Fortunate 