Michele’s Posts About M.S & M.S. Research Links
Michele’s posts
New Research Study Indicates Smart Devices Are Reliable for Monitoring MS
I have used my smart watch and I phone to monitor my steps, and asymmetry while walking for the last two years. It is wonderful to see more public discussion of ways to monitor MS.
Keep readingAnother Survey – PROMS – Reason for hope and change in health care
I just took another survey about patient-centered health care experience. This is really important as I have felt health care does not really connect wiht the challenges of people with MS. The general feeling is that “as a patient you just have to deal with it.” Patient Reported Outcomes for Multiple Sclerosis (PROMS) is an…
Keep readingA Survey on the Influence of Hormonal Stages of Life on Multiple Sclerosis Symptomology and Physical Function.
I just participated in an online survey that is seeking ways to work with health care providers and their patients with MS. These studies are so important for me because I can participate and contribute educating the health care industry about patients with MS. Kristin Johnson is a researcher from Colorado State University in the…
Keep readingOnline Survey: Resilience, Adversity, and Health in People with Multiple Sclerosis
I just finished a research survey posted on nationalmssociety.org. I was struck by the fact that this research was interested in considering emotional/mental behaviors and resilience–like someone actually was willing to get inside the heads and bodies of msers. In nutshell, this captures the big picture of the survey: “Researchers at the University of Washington…
Keep readingInteresting article on likelihood to stay on treatment plan
I get it. Sticking to a medication plan for MS can be a challenge. You might feel a bit tied down by the injections or the IV treatment plans. Furthermore, the costs for such DMT are very steep – from $3000 to $9000 without insurance or support from the drug companies. I wonder if insurance…
Keep readingActivism for MS Global Access to DMT
Monday, July 31, 2023 Multiple Sclerosis Coalition Applauds World Health Organization Decision Press Release Multiple Sclerosis Coalition Applauds World Health Organization Decision Decision to add MS treatments to Essential Medicines List will improve access globally Washington, DC, July 26, 2023: Recently, the World Health Assembly adopted the Intersectoral Global Action Plan on epilepsy and other neurological disorders,…
Keep readingMS Research Links
Why Being Seen Is Vital for MS patients
Multiple Sclerosis News Today
Germans working on vaccine for Epstein-Barr Virus-a potential precursor of MS
Multiple Sclerosis News Today
Skin patches may be more convenient MS antibody medicine
Multiple Sclerosis News Today
Yoga better than physical therapy at improving MS quality of life: Study
Multiple Sclerosis News Today
Greater psychological resilience tied to better outcomes in MS: Study Multiple Sclerosis News Today
Region in Japan sees steady increase in MS prevalence over 20 years Multiple Sclerosis News Today
MS Fortunate 