Friends and family ask me about my health. My answer varies with each question. I am reluctant to detail all my symptoms because these symptoms are uniquely mine, and they change every day and even within a day. Neurologists use the Expanded Disability Status Scale (EDSS)as a guideline for discussing and treating MS disability.
For myself, I use the walking asymmetry from my I-phone to help me judge my daily walking ability and gait. I also track how I feel: what aches, where is my disfunction, and what is my level of pain. These combined give me a strong idea about how I feel. I range from 2 to 6 on any given day. For me, this scale is one determinate of my MS, but not a complete look at my illness.
I have included the following scale for what is used by medical teams to determine disability. My experience tells me that my score varies a lot depending on my body, my fatigue level, and my ability to rest. Attitude keeps me on the lower end of the scale, and one’s mindset can not be underestimated. This I know. In reality, what you see is often the best I can present on any given day.
Source:
MS Fortunate 